Kendra Mangione,
The family of a little girl who uses cannabis oil to treat her seizures
are celebrating a small victory now that Health Canada is allowing them
to access the product.
Kyla Williams, a four-year-old living in Summerland, B.C., has
intractable epilepsy and used to suffer from more than 300 seizures per
day. Doctors told Kyla's parents when she was a toddler that she likely
wouldn't last long given the severity of her condition.
"Every time she seizures her brain deteriorates, so she was not given a
long life," her mother Courtney told CTV Vancouver's Kent Molgat. The
family tried traditional medication, but the drugs didn't help the young
girl.
Then they tried Charlotte's Web Hemp Extract, a type of cannabis oil
touted by some researchers as an effective treatment for epilepsy. The
oil has very low levels of tetrahydrocannabinol (THC), the psychoactive
ingredient in marijuana.
The oil has high levels of cannabidiol, a substance that some believe
can calm the electrical and chemical activities in the brain.
The version of hemp oil sold by Charlotte's Web costs between US$40 and
$275 depending on the size of bottle. It comes in two flavours: olive
oil and mint chocolate.
Two years after her family was told she would not live long, Kyla is
often seizure free for weeks at a time, progress her family says is due
to their use of cannabis oil.
But her family has had to fight to have access to the oil, shipments of
which had been seized multiple times by the Canada Border Services
Agency because of the country's marijuana laws.
Kyla's grandmother, Elaine Neussler, has been fighting for access to Charlotte's Web for most of the girl's life.
"From the very beginning it's been a complete struggle," she told CTV News.
Now there's a way for the family to get their hands on the substance
that calms the girl's seizures.
Health Canada is allowing others to
access the products, as long as they have an exemption letter to the
country's narcotics laws.
"We are extremely happy, and we feel great relief," Neussler said of the decision.
And the family credits their local MP for the change in policy. Stephen
Fuhr, MP for Kelowna-Lake Country, said the change is a reflection of a
new and more compassionate form of government.
Neussler met with him on Thursday, giving him a hug and telling him she had to thank him.
"At the end of the day, I'm super happy that people get what they need," Fuhr said.
Neussler and her ex-RCMP husband have vowed to have the product
delisted as a drug to further improve access for those who rely on it.
"It is ironic," said Chris Neussler, Kyla's grandfather.
"I used to arrest people for the same thing that we're doing. But I will do anything for Kyla and my family."
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